We conducted 1 hour of contextual and semi-structured interviews with each family in their homes. We inquired about family dynamic, child’s diagnosis, hospitalization, information access, and the makings of both good and bad days. For a subset of families, we asked them to share artifacts—such as albums and organizing tools.
 After the interviews, we facilitated 1 hour of generative research to shift the participants’ mindsets from present to future and surface potential solutions. First, we asked participants to envision and write down an ideal future for themselves, their child, and their family. Second, we asked the participants to use a Venn diagram and series of stickers to diagram qualities of their ideal vision for themselves, their child, and their family.
 We facilitated a card sorting exercise to identify highest pain points and participant-centered solutions related to aspects of the caregiver journey. We asked participants to sort through 22 cards and choose 3 that they would love to completely redesign.
 We asked families if they would be closer to achieving the currently unattained components of their ideal vision if the chosen 3 journey aspects were redesigned. The answers were unanimously, “yes.”
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